I was able to get Maddy up and dressed today, and she's happy as a clam (how happy, exactly, are clams, by the way??), talking and grinning and signing "Mama." I snapped some pictures with my camera phone--they're a bit blurry, but you can get the general idea! She's down to one IV. Her Mic-Key (feeding tube button) is "up to burp" right now. You can see tubing attached to an open syringe in the picture. The reason for this is that it's alleviating any pressure on her stomach, which is newly wrapped around her esophagus. Once she begins to tolerate her more normal feeds, we'll only hook her up to an open syringe 15 minutes before and for 30 minutes after her feeds. It literally burps her! :)
Oh, and we got switched to PediaSure today, so that she will be getting all the micronutrients that a 14-month-old girl should be getting.
Thanks for your prayers and many emails, FB messages and phone calls! We will tell her often how much support and love we have received through each of her battles and in between as well.