Tuesday, May 31, 2011

Plans for Madeline


Last week, I attended my first-ever case conference and helped write Madeline's first IEP (Independent Education Plan). Madeline will be in an integrated (typical/special needs) preschool setting at a terrific school here in town. This is how she will receive most of her therapies since she will be aging out of First Steps in July.




Here are my remarks of that day, posted to Facebook:



Have to admit, all the paperwork, all the therapists, school reps, liaison, all the compliments about my little girl, all the clinical numbers showing lower numbers than I'd like, all the recommendations, and just the fact that we were writing an IEP...It was all a tad (or more) overwhelming today. It's amazing to know your child insi...de and out and still have to listen to someone read through the list of what she can or can't do. Everyone was so sweet. Nobody loves her and knows her like I do, and no numbers or checkmarks or Xs will ever paint the beautiful picture that is Madeline.



video





If you want specifics for prayer, please intercede for us on behalf of Madeline's speech. She signs a lot, but we need her to do more than label items. Cognitively, I think she's not as far behind as what her speech would indicate, but overall, being non-verbal is slowing her down across the board. She signs, mouths some words, but only babbles a little. Her neurodevelopmentalist has given us a referral for a communications evaluation to see about getting a communication board of some sort. This could be a vital tool to coax it out of her!


I'd love to see her take off soon so that we can see where she's at in that little mind of hers! This preschool experience will give me a chance to gauge whether or not I will have the ability to school her at home once she's ready for Kindergarten, a couple years away, thankfully.

Monday, May 30, 2011

Lazy Days of Summer with an Easter flashback

Since I never posted Easter pics, this is just for you!
I'm enjoying my cool house on one hot Memorial Day. This past Tuesday we officially finished school for the 2010/2011 school year, and we've revelled in our new-found freedom of summer. Still a little crazy with therapy, meeting with the school (more on that in a bit), and company, but the pace is a bit slower.

Olivia's closing program at preschool was bittersweet. I've seen her grow and change and start to say her "th" sound, which she likes to practice on me every once in a while, exaggeratedly sticking her tongue out to get it right. Her teachers declared her a delight, always quick to obey, and kind to others. Kindergarten, slow and gentle, awaits around the corner, and since she's been begging me to teach her to read, I'm sure that will be a priority for the coming year.

Second grade for Carli took us on a tour of the United States and some of her history, filled two notebooks on our first ever notebooking experience, delighted us with hands-on science activities, and started us down the path of nature study (though we want to indulge in this more consistently this summer and through the years ahead). Even though Carli is sure that she "hates math," she has done a terrific job, and this year she discovered a love for chapter books with bookmarks. The "code" is finally embedding itself in her little brain which makes the "work" of reading much more enjoyable. We did not do as much handwriting practice or art as we should have, but we loved the book basket full of living books and our study of Tchaikovsky's The Nutcracker, Swan Lake, and Sleeping Beauty.

Carli has fully arrived at the questions stage. She could sit for long periods of time asking endless questions, especially if it will keep her from a math worksheet, eating something she's not fond of, or settling down for sleep. Right now she's concerned for poor old Satan. She doesn't understand why he can't just say he's sorry and go to heaven. When asked not too long ago what question she would like to ask Jesus the most, she said, "I'd ask if He would please just forgive Satan so he wouldn't have to go to hell." Okay then.

Three of Madeline's therapists have flown the coop, so to speak, one to a maternity leave, and two because of changes with First Steps that necessitate us choosing from agencies rather than independent therapists. We MISS them! They are like family after three years of working closely with them every week. Our two new therapists are lovely ladies, and we will be sad to see them go in July when Maddy ages out of First Steps.

Last week, I performed the dreaded deed of attending the first case conference with the school system. (More on that in another post). She continues to astound us with her wheeling abilities. She loves the big open areas at church, especially where she can practice circles and steering toward whichever person she most wants to bless with a hug. Due to some job uncertainties, we're praying her new wheelchair will be approved before insurance becomes an issue. The demo chair is still in our possession and I'm NOT calling her rep back to see when he's going to reclaim it! :) He's fully aware of the lapsed pick-up date...I heard through the grapevine that he just may be engineering it so we can have it as long as possible, since he's so amazed at how well she's doing!

I'm not quite ready to unveil 2011/2012 plans for Carli and Olivia. I have been research mode (one of my most favorite times of the year), and I have about 95% of my mind made up on a big leap. Still praying much for wisdom, so much so that sometimes my mind will not shut down at night and I lie awake too long pondering the possibilities. Exciting stuff, but besides actual curriculum, I have a big reading list of my own to get through so that I can successfully carry out this style of education I wholeheartedly believe in. More on that in another post, when I actually have all plans a go.

This is a weekend for company! We were blessed to have Mom and Dad Asbury, Emeline and Lorraine (Glen's younger siblings and aunties to our three girlies), and Carli's friend Katie over for Sunday ham dinner. Mmmm. (The ham gravy and pineapple sauce were divine!). Last night, Kirsten and Caitie, dear claimed sisters of mine, and The Boy (Andrew) visited for lots of homemade pizza and laughter and getting acquainted with said Boy. (Nana Di, I have to tell you that he sat and played gently with Madeline, oohed and ahhed over her x-ray pics, and listened with earnest attention to Olivia's performances, so I'm thinking we can put a big A in the "interaction with children" column.) Today we're happy to relax with the Bryants around our grill.

We were supposed to be in Pennsylvania visiting my lovely mother for the weekend and beyond a few days to see Jordan's family, too, but due to the job situation briefly mentioned above, we thought it best to stay put for the time being until we know the next step in the journey. We're disappointed, but thankful for friends and family to fill our days so we don't sit around and mope about Jordan having all the fun! :) By the way, Jordan, I don't want to hear even one comment about Gibbles Fire Chips or Tom's Pizza. That would just be mean. Humph.

I trust you all a meaningful Memorial Day.



Olivia about to take off on a bike ride with Daddy.

Must have been fun...they were gone for more than an hour!

Thursday, May 19, 2011

Letter to the President



Today we finished out our history lessons by putting our current President's picture on our timeline. When I told Carli that even though we may not like him or agree with him very much, we still need to pray for him, she told me, "I don't want to pray for him. When I see his picture it makes me sick in my stomach." [One of the little boys in her Kindergarten class (2 years ago) told her that he kills babies, so she's not been really fond of him since. We had to explain a little more than we intended to at her tender age of 5.] Our last assignment in history was to write a letter to him. Here is what she dictated to me (she'll copy it to writing paper):



Carli Asbury
xxxxxxxxxxxxxxxxx
xxxxxxxxxxxxxxxxx



President Barack Obama
1600 Pennsylvania Avenue NW
Washington, DC 20500



Dear Mr. President,



My name is Carli. I am a homeschooled little girl. I am 7 years old, and I'm almost 8. I'm just writing to say I'm going to pray for you. I'm praying to God to give you wisdom.



Would you like to write back to me?



Sincerely,



Carli