Saturday, September 19, 2009

Home again!

Just in case you're not on facebook and hadn't heard, we are home from the hospital as of last night. We took a short detour to have a quick supper with Glen's brother (who got to hold Maddy for the first time ever, and yes, Maddy flirted up a storm with him), and then home to figure out this new situation of ours.

Maddy is still happy and doing well. Mommy, on the other hand, is trying to figure out how to keep the vesicostomy from leaking all over the casts while I change/cath her. Oh, and last night the g-tube wouldn't flow, and didn't until after I called the nurses' line and was waiting for a call back. I still don't know why. It wasn't clamped, and it wasn't backing up like she wasn't tolerating the feed. It just wouldn't flow. Even though I was sitting right beside her, I didn't notice until the formula filled up the syringe and overflowed. Grrr.

I spent the day getting ready for company--Glen's cousin and her husband, from Colorado, are coming any minute. I'm glad I had some extra time to clean, though Glen had kept up the house the best he could while I was gone, thankfully. Anyone want to come tackle my fridge, though??? How does it get so messy? I wipe it out more frequently than ever now, but stuff spills from who-knows-where, and you know what, I'm too pooped to care at the moment. Maybe next week.

Oh, and speaking of next week: Monday is an exciting day for us. Besides getting to visit with Uncle Keith for a few more hours, we also are getting Maddy's first wheelchair! It's not one that she will wheel herself, but it's going to help her so much in sitting up straight, freeing her to play and enjoy life from a whole different vantage point.

Monday is also exciting because I will find out who my mentor is going to be. I know that there are many prayer warriors who have been praying for months over who should be matched with whom, and I'm excited to see what God has in store for me--I know that I have much growing to do, and that I have a lot to learn about continually deepening my walk with Christ.

1 comment:

Lori said...

Did you know...

1) that your Maddy now has some control over how fast her g-tube flows? If she laughs or squeezes her tummy tightly while you are feeding her she can actually stop the flow herself.

2)if there is any air in the extension line it can stop the flow of the formula going in. This is especially important to know if she immediately burps when you attach her nicely primed extensions - little pockets of air also immediately appear.

I am so glad you are home. Enjoy learning all your new advancements with Maddy!

I also remember when Meg got her first wheelchair - she was 2 - it was really exciting.