Well, another "first" for us! I've never had to take my kids to the emergency room before, but I made my first trip today with Madeline. She developed a nasty cough and ragged breathing and a low-grade temp. Because of her high risk factors, I didn't want to just put it off and see if she'd improve on her own. So this morning I called the on-call doctor through our doctor's office, and he agreed that I should have her checked out immediately. I was very grateful that the ER doctor didn't blow me off. He'd worked at Riley Children's and had worked with kids with DiGeorge syndrome before, so he knows that things can escalate quickly if not treated aggressively. We were there for 3.5 hours, and they did blood work and a chest x-ray (with absolutely no tears on either count!). She has an acute upper respiratory infection. The x-ray showed clear lungs, and the blood work did show that she is fighting the infection pretty well, given her lower T-cell counts. He gave her a pretty strong antibiotic injection and a prescription for oral antibiotics. I'm hoping that she'll start to feel better soon.
If you think about it, please pray for my baby.