Monday, August 18, 2008

Here you go, Aunt Pam!

My Uncle RB passed on a message to me through Glen that according to Aunt Pam, I'm woefully behind on my blogging. This is true, I notice. I'm not sure where that time has gone, but it has, and quickly. So here's a brief update and a couple pictures. Please excuse the randomness of my comments. My brain seems rather fried at the moment.

Carli is enjoying kindergarten and riding the school bus, but I haven't been able to pull a whole lot of details out of her to pass on to you. She told me today that she made four new friends. I've been working Bible lessons (a little more in depth than just a Bible story before bed), and she seems to really enjoy that, especially learning a hymn. When she's playing around the house, she loves to make up songs that sound half-way sensible. The individual thoughts are good, anyway, but when you put them all together, it starts to get a little silly.

Olivia is growing and talking more and more. Wish you could here her sing and coo over Maddy. I was worried about how she'd do with Carli leaving every morning, but she entertains herself quite nicely. It's really not been a huge change for her since Carli is a notorious "sleeper-inner"--Livy always had a couple hours to herself anyway.

Madeline is five weeks old today--hardly seems possible. Last week was particularly busy for the little gal: church, lab work, four doctor appointments and a birthday party! :) We saw the endocrinologist, neurologist, immunologist and pulmonologist, and we had good visits all the way around. She's had her calcium carbonate dosage reduced, her shunt and back are healing well, and she has a sleep study scheduled to see if we can get her off oxygen. The immunologist was especially helpful, since I didn't know what all to expect regarding Maddy's immune system. Her numbers look relatively decent, though her leukocytes are a bit low. We'll continue to monitor these, but for now, they aren't low enough to put her on an antibiotic, so that's encouraging. We do have to be particularly careful that she doesn't get PCP (pneumonia), the flu would be especially rough if she got that with the low immune system. We may be staying in more than usual this winter. Other than that, not much to report--she's growing and changing everyday, I think! Oh, and First Steps is coming tomorrow for her initial evaluation. I know a couple of the developmental therapists, so I'm hoping to be assigned one of them.

Well, I'm tired even though it's not quite 10 p.m. Maybe I'll take a cat nap before Maddy wakes up again.

Love you all...thank you for your continued prayers and support. We feel so loved and spoiled--we were blessed by a collection from another SS class, three meals coming in this week, one invitation to dinner, and someone to take Olivia to play for a while, and a huge box of clothes coming in the mail any day (thanks, Mom!). Like I said--spoiled rotten!

1 comment:

Anonymous said...

What a sweet niece! Can't wait for the pictures. I assume we can expect weekly updates in the future? LOL!

Hugs...Aunt Pam